In a lot of ways today has been one of the worst I have ever had. The herniated disc in my neck has been really bad which means I have pain from the top of my back right down my arm into my hand.
This means getting my husband to help me. He has been rushing around getting cold pads out of the freezer, putting a hot pad in the microwave and helping me get attached to my TENS maching. I explained where the sticky pads had to go and he was rooting around inside my nightie to stick the pads on the right places! Then it is finding the right connections, the white one on the bottom pad the red one on the top pad etc. So there he is almost strangling me while he tries to attach the snapper to the pad.
Then he says he will do the heat pad and bring some cold pads when the TENS has finished so we set the timer on the TENS and he goes to set the timer in the kitchen while the machine pulses away to, hopefully, get rid of the pain. No joy though. I have had hot pads, cold pads, TENS and painkillers but nothing has worked and I am still in pain and not able to get hold of the rheumotologist until tomorrow. I can't sleep because it so much if I lie down. It also hurts to sit down, stand up and and worst of all try to walk.
When he isn't getting pain relief he is rushing round like an idiot to pour me a drink, make tea, cook the dinner and cut mine up because even eating is difficult. As I need to test my glucose due to my diabetes he comes to help with that too. Then he sits down to watch his footie team to find the game has been postponed (no that isn't funny.)
Me I just lie here saying 'I can't ..............' I have to bang on the wall to get his attention which from my point of view isn't funny either just flaming painful.
He came in just now to ask if he could do anything. All I can say is I want to get rid of the pain and the only way that is going to happen is a doctor giving me a strong painkilling injection. When this happened last October I just got pain in my neck and a bit of shoulder pain but the numbness in my hand was the problem. Which got worse as the numbness spread up to my elbow. Now strangely the numbness I could cope with, it wasn't nice but this pain is unbelieveable.
I am wearing the neck collar that was given to me in October but it isn't doing anything to help.
A friend on facebook said perhaps I hade been typing too much, which is possible I suppose. But I cannot be sure. What I have wondered is perhaps a nerve is trapped, if so can it please extricate itself from where it has gotten itself trapped, thank you.
This is a whingeing blog today, I know and am sorry but sometimes it is essential to get these things off your chest.
Showing posts with label painkillers. Show all posts
Showing posts with label painkillers. Show all posts
Tuesday, 17 January 2012
Thursday, 12 January 2012
Staying positive.
We woke this morning to a very grey, foggy, damp, cold day.
The nurse came to do my blood test and give me my methotrexate injection. She was very cold and said the fog was quite dense. We had to go shopping and visit the pharmacy so we wrapped warmly and set off. The thermometer in the car was registering minus 1 as soon as we left home.
The local market town was freezing. I had a thick jacket, hat, boots and gloves but still felt cold. We went to get my medication and then did the shopping as quickly as possible to get home. Luckily we didn't have to wait around too long and we were on our way home. By this time my hips, back, and neck were agony.
The wood burner in the kitchen was warmly welcoming. A hot cup of coffee went a long way to warm us up on the inside. I was insistent that I help prepare lunch and dinner but the pain in my hands made things very difficult but being so stubborn I ploughed on.
After lunch we sat by a huge log fire in our lounge with a cup of tea and a good book. Where better on a horrid day? Curled up in my big armchair is was fantastic, watching the flames and feeling the warmth made me appreciate what I have.
Unfortunately the methotrexate always make me feel quite unwell but I am so stubborn I don't want to give in unless there is nothing else for it.
Methotrexate has not done me any favours. Dizziness, sore throat, itching, hair loss and problems with my lungs. I had pneumonia twice in four months. One of the side effects noted about methotrexate is that it causes mild hair loss but for me I lost all the hair on my legs, bikini line and under arms.
I also take prednisone daily. The side effects of that are also very distressing. The weight gain around the abdoment, the dowger hump, the round 'moon' face, acne (for me this has been mainly on the chest, arms, buttocks and occasionally on my face. I have developed diabetes, I have osteopenia in my left hip, high blood pressure and where I have lost hair in certain places I have an inordinate amount of hair on my face. I am lucky that I am very fair so the hair is not as noticeable as it could be but it is there.
In October I was hospitalized with a herniated cervical disc. On admission I was also found to be diabetic. After initially increasing the dose of prednisone over a month while the disc healed, my rheumotologist decided it might be prudent to lower the dose slowly over the next few months to get me off the steroid. I was happy with this arrangement but I am amazed to find that since lowering the dose I now have hairy legs! I was shaving my legs lightly every three months now if I leave it I shall be plaiting the hairs! Still no hair under the arms though, but I do believe that I am seeing less hair on my face. The dowger hump has gone and I have noticed a great change in my face which looks less moon faced. As I was put on a diabetic diet I am losing weight which is good news for the arthritis, the diabetes and the high blood pressure.
I still get pain though which perhaps is due to the lower dosage of steroid but until the blood test results come back I really don't know. My neck has been in so much pain that I have temporarily increased the steroid after talking to my rheumotologist, he has that this is for two weeks but if the pain and the side effects of the disc continue then we will have to discuss the matter.
I have enough problems with the pain Fred gives me without the cold and damp weather we are stuck with at present. Managing Fred, coping with the pain, trying to get off of medication is very stressful which plays right into the hands of the auto immune system and throws that right off kilter.
But stay positive. I am positive it hurts, I am positive I am fed up with Fred, I am positive I hate my medication, I am positive I loathe the side effects.
The nurse came to do my blood test and give me my methotrexate injection. She was very cold and said the fog was quite dense. We had to go shopping and visit the pharmacy so we wrapped warmly and set off. The thermometer in the car was registering minus 1 as soon as we left home.
The local market town was freezing. I had a thick jacket, hat, boots and gloves but still felt cold. We went to get my medication and then did the shopping as quickly as possible to get home. Luckily we didn't have to wait around too long and we were on our way home. By this time my hips, back, and neck were agony.
The wood burner in the kitchen was warmly welcoming. A hot cup of coffee went a long way to warm us up on the inside. I was insistent that I help prepare lunch and dinner but the pain in my hands made things very difficult but being so stubborn I ploughed on.
After lunch we sat by a huge log fire in our lounge with a cup of tea and a good book. Where better on a horrid day? Curled up in my big armchair is was fantastic, watching the flames and feeling the warmth made me appreciate what I have.
Unfortunately the methotrexate always make me feel quite unwell but I am so stubborn I don't want to give in unless there is nothing else for it.
Methotrexate has not done me any favours. Dizziness, sore throat, itching, hair loss and problems with my lungs. I had pneumonia twice in four months. One of the side effects noted about methotrexate is that it causes mild hair loss but for me I lost all the hair on my legs, bikini line and under arms.
I also take prednisone daily. The side effects of that are also very distressing. The weight gain around the abdoment, the dowger hump, the round 'moon' face, acne (for me this has been mainly on the chest, arms, buttocks and occasionally on my face. I have developed diabetes, I have osteopenia in my left hip, high blood pressure and where I have lost hair in certain places I have an inordinate amount of hair on my face. I am lucky that I am very fair so the hair is not as noticeable as it could be but it is there.
In October I was hospitalized with a herniated cervical disc. On admission I was also found to be diabetic. After initially increasing the dose of prednisone over a month while the disc healed, my rheumotologist decided it might be prudent to lower the dose slowly over the next few months to get me off the steroid. I was happy with this arrangement but I am amazed to find that since lowering the dose I now have hairy legs! I was shaving my legs lightly every three months now if I leave it I shall be plaiting the hairs! Still no hair under the arms though, but I do believe that I am seeing less hair on my face. The dowger hump has gone and I have noticed a great change in my face which looks less moon faced. As I was put on a diabetic diet I am losing weight which is good news for the arthritis, the diabetes and the high blood pressure.
I still get pain though which perhaps is due to the lower dosage of steroid but until the blood test results come back I really don't know. My neck has been in so much pain that I have temporarily increased the steroid after talking to my rheumotologist, he has that this is for two weeks but if the pain and the side effects of the disc continue then we will have to discuss the matter.
I have enough problems with the pain Fred gives me without the cold and damp weather we are stuck with at present. Managing Fred, coping with the pain, trying to get off of medication is very stressful which plays right into the hands of the auto immune system and throws that right off kilter.
But stay positive. I am positive it hurts, I am positive I am fed up with Fred, I am positive I hate my medication, I am positive I loathe the side effects.
Wednesday, 11 January 2012
Herniated cervical disc flares again
Last October I was hospitalized for a month with a herniated cervical disc. I had to wear a cervical collar, take strong painkillers, not lift, not turn my head, take increased amounts of Prednisone and just rest.
My rheumatoid arthritis was diagnosed in 2008 and has spread through my body. The last places it appeared were my neck and my jaw. In 2010 I started to feel very dizzy, have pain in my neck, shoulder and top of my back and also numbness in my left hand. The dizziness became quite a problem as I started to fall and it was then my husband took me to the hospital. I had a scan and was told it was the cervical disc that was herniated to match one in my lower back. Between the two I have a great deal of pain and walking is very difficult. I use a wheelchair because of the pain but sitting is as uncomfortable as walking and at times even lying down is painful.
I have looked into the options for pain relief. I use a TENS machine which I like as it is easy to use and no medication is required, heat pads and cold pads are brilliant but only give temporary relief, strong painkillers work well but if I take the amount recommended by the Rheumotologist I get stomach problems.
People are not very helpful with their comments.
I get a bit of pain now and again.
You should do more/less exercise.
Arthritis is only for old people.
Its mind over matter, just get on with it.
Its only arthritis it can't kill you.
At least its not cancer.
So many people are not well informed and don't understand about rheumatoid arthritis and what it can do not only to your joints but other parts of the body too. It can cause dry eyes and mouth, pleurisy and heart problems. It is also recorded that people with rheumatoid arthritis have a shorter life expectancy. Due to the steroids I have also developed diabetes.
I was told if I can come off of the steroids there is the possibility the diabetes will clear up. In December I saw the rheumotologist and he was pleased with the way the disc was healing so I started to decrease the steroids. I have had pain but have stuck with it. Then a few days ago I started to feel pain in my neck again. The dizziness returned and some numbness in my hand. I rang the rheumotologist and he told me to start wearing the neck collar again, take painkillers, increase the steroids, not to lift, don't turn my head; all the things I did last time. I had hoped to be off the steroids by April. If my symptoms are not better in two weeks I have to ring him again.
In the meantime I am reliant on my husband and family again and my independence has had to take a back seat for the time being. I can only hope that my disc repairs in the next two weeks.
My rheumatoid arthritis was diagnosed in 2008 and has spread through my body. The last places it appeared were my neck and my jaw. In 2010 I started to feel very dizzy, have pain in my neck, shoulder and top of my back and also numbness in my left hand. The dizziness became quite a problem as I started to fall and it was then my husband took me to the hospital. I had a scan and was told it was the cervical disc that was herniated to match one in my lower back. Between the two I have a great deal of pain and walking is very difficult. I use a wheelchair because of the pain but sitting is as uncomfortable as walking and at times even lying down is painful.
I have looked into the options for pain relief. I use a TENS machine which I like as it is easy to use and no medication is required, heat pads and cold pads are brilliant but only give temporary relief, strong painkillers work well but if I take the amount recommended by the Rheumotologist I get stomach problems.
People are not very helpful with their comments.
I get a bit of pain now and again.
You should do more/less exercise.
Arthritis is only for old people.
Its mind over matter, just get on with it.
Its only arthritis it can't kill you.
At least its not cancer.
So many people are not well informed and don't understand about rheumatoid arthritis and what it can do not only to your joints but other parts of the body too. It can cause dry eyes and mouth, pleurisy and heart problems. It is also recorded that people with rheumatoid arthritis have a shorter life expectancy. Due to the steroids I have also developed diabetes.
I was told if I can come off of the steroids there is the possibility the diabetes will clear up. In December I saw the rheumotologist and he was pleased with the way the disc was healing so I started to decrease the steroids. I have had pain but have stuck with it. Then a few days ago I started to feel pain in my neck again. The dizziness returned and some numbness in my hand. I rang the rheumotologist and he told me to start wearing the neck collar again, take painkillers, increase the steroids, not to lift, don't turn my head; all the things I did last time. I had hoped to be off the steroids by April. If my symptoms are not better in two weeks I have to ring him again.
In the meantime I am reliant on my husband and family again and my independence has had to take a back seat for the time being. I can only hope that my disc repairs in the next two weeks.
Monday, 9 January 2012
Thank goodness for the teapot
Today I have had need of my Teapot. I woke not feeling too good and then, due to my arthritis, I fell.
I already have problems with my hip and back so it was those that were affected. The pain has been quite horrendous and I have had to rely on my husband to help me. I have been resting all day knitting, reading, watching television and surfing the internet.
To deal with the pain I tend to use painkillers, heat or cold pads (depending on where the pain is)and I also use my TENS machine. I use it when the arthritis is in my hips, back, knee, hand, elbow and shoulder. It is easy as you can just carry on as usual while the machine pulsates and helps relieve the pain. I also try and take my mind off of the pain; which is not always easy.
I had plans today too which is annoying. I wanted to make soup, prepare some meals for a couple of days and to take my computer to the computer doctor. I am borrowing my husband's computer at the moment and it is just not like having my own.
In some ways I am glad I didn't have to go out as since last evening the weather has been terrible. All night the wind howled around the house and rain lashed the window shutters. Today the wind howled in the chimney and I could see the rain pouring down and hitting the window panes.
I have plans for tomorrow so I am hoping the pain and the weather will have improved by then
I already have problems with my hip and back so it was those that were affected. The pain has been quite horrendous and I have had to rely on my husband to help me. I have been resting all day knitting, reading, watching television and surfing the internet.
To deal with the pain I tend to use painkillers, heat or cold pads (depending on where the pain is)and I also use my TENS machine. I use it when the arthritis is in my hips, back, knee, hand, elbow and shoulder. It is easy as you can just carry on as usual while the machine pulsates and helps relieve the pain. I also try and take my mind off of the pain; which is not always easy.
I had plans today too which is annoying. I wanted to make soup, prepare some meals for a couple of days and to take my computer to the computer doctor. I am borrowing my husband's computer at the moment and it is just not like having my own.
In some ways I am glad I didn't have to go out as since last evening the weather has been terrible. All night the wind howled around the house and rain lashed the window shutters. Today the wind howled in the chimney and I could see the rain pouring down and hitting the window panes.
I have plans for tomorrow so I am hoping the pain and the weather will have improved by then
Sunday, 8 January 2012
Give it a name and you have someone to blame!
My rheumatoid arthritis is called Fred.
No, I am not mad I just feel that when I am in pain, am exhausted, brain won't work I have someone to blame. That is where Fred comes in.
Today I sat in the car for hours and Fred is now complaining. Fred needs soothing so it is the head pad, TENS machine, rest in a comfy bed, painkillers and indulgence. Fred gets quite upset when I try and exercise, walk, be independent. But do I give in to Fred? Sometimes, like now, I will rest and let the screaming joints calm down. Other days I will keep going and going and going until I am in tears. I don't have the word pacing in my vocabulary and my husband will keep on about pacing yourself, you know it is best in the long run but I want to finish what I started.
When I get to the stage I am at this evening I need help. Help to undress, help to get ready for bed, help to get into bed; I feel like a baby. My husband cooks the food and cuts mine up to help me. I am very lucky but sometimes I don't show my appreciation.
I don't like asking for help and my husband says I am my own worst enemy. I feel so guilty you see for being ill, for having problems in doing things, not pulling my weight in the house and for having to ask people to do even simple things for me.
When I say this I am told that he wouldn't do some much for me if he didn't love me like he does. He knows how to make me cry!
The worst part is when I have a flare in my rheumatoid arthritis it is preceded by a change in my temperament. The poor man can't do anything right, but he carries on exactly as before doing things for me and helping me.
That is love.
No, I am not mad I just feel that when I am in pain, am exhausted, brain won't work I have someone to blame. That is where Fred comes in.
Today I sat in the car for hours and Fred is now complaining. Fred needs soothing so it is the head pad, TENS machine, rest in a comfy bed, painkillers and indulgence. Fred gets quite upset when I try and exercise, walk, be independent. But do I give in to Fred? Sometimes, like now, I will rest and let the screaming joints calm down. Other days I will keep going and going and going until I am in tears. I don't have the word pacing in my vocabulary and my husband will keep on about pacing yourself, you know it is best in the long run but I want to finish what I started.
When I get to the stage I am at this evening I need help. Help to undress, help to get ready for bed, help to get into bed; I feel like a baby. My husband cooks the food and cuts mine up to help me. I am very lucky but sometimes I don't show my appreciation.
I don't like asking for help and my husband says I am my own worst enemy. I feel so guilty you see for being ill, for having problems in doing things, not pulling my weight in the house and for having to ask people to do even simple things for me.
When I say this I am told that he wouldn't do some much for me if he didn't love me like he does. He knows how to make me cry!
The worst part is when I have a flare in my rheumatoid arthritis it is preceded by a change in my temperament. The poor man can't do anything right, but he carries on exactly as before doing things for me and helping me.
That is love.
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